George Tappenden

4th September 2024

2024 Shortlisted Nominee
Positive Role Model Award: Disability

 

George Tappenden, a 12-year-old from Tunbridge Wells, is a determined advocate for individuals with Spinal Muscular Atrophy. Refusing to let his disability define him, George actively campaigned for treatments Spinrazaand Risdiplam. He has spoken in the House of Commons and on major media platforms, contributing to the approval of both treatments nationally. He participated in a trial for Risdiplam in Paris with hospitals using his outcomes to educate. As a model with Zebedee Talent, George champions inclusive media representation. This incredible individual fights for accessibility rights and inclusive education inspiring his school to become accessible. George also shares his physio sessions online to help others globally. George excels academically, plays the drums, and studies public speaking to better advocate achieving distinction. George spoke on stage this year raising 400k for charity. He believes that positive change requires proactive effort.