GAIN (Guillain-Barré & Associated Inflammatory Neuropathies)

Community Organisation Award

Community Organisation Award for Disability: Sponsor - Direct Line Group

Nominee Profile

Location: Sleaford
GAIN (Guillain-Barré and Associated Inflammatory Neuropathies) is the only UK charity dedicated to supporting people impacted by Guillain-Barré Syndrome and other related inflammatory neuropathies. GAIN is a well-respected national charity reaching and supporting thousands of people impacted by GBS, CIDP, MMN and other life-changing conditions each year.

GBS is an autoimmune neurological condition that affects the nerves that control movement and senses (the peripheral nervous system). It can cause numbness and weakness, and some people may be completely paralysed or may require intensive care treatment. GBS impacts people in very different ways and everyone’s journey is different.

CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) is a rare progressive condition that is characterised by gradually increasing sensory loss and weakness over a longer period of time. Long term treatment and support may be needed.

Around 1,300 people are impacted by GBS, CIDP, and related conditions each year, and for many people the impact on them and their families is significant.

GAIN provides support, information, and advice to people impacted by GBS and other related conditions. The charity also carries out and funds research, as well as raising awareness around these rare yet life changing conditions. GAIN does not receive any government funding, instead we rely on donations and funding from the public to provide services, and to seek access to new treatments and tools to support people’s journeys through GBS, CIDP, and related conditions.

To find out more about GAIN then check out our social media channels (@gaincharity) or visit our website www.gaincharity.org.uk.

To contact us please email office@gaincharity.org.uk or call 01529 469910.

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