Toby Henderson Trust @ The Autism Hub

Community Organisation Award

Community Organisation Award for Disability: Sponsor - Direct Line Group

Nominee Profile

Location: South Shields
The Toby Henderson Trust at the Autism Hub delivers a pre and post-diagnostic autism support service for families of children and young people up to the age of 18 who reside in the South Tyneside postcode area. The aim of our service is to deliver high-quality, person/family-centred care and support which complies with NICE Guidelines, best practise and expected standards of equality, diversity and inclusion.
For context – Autistic individuals have a neurological difference that means they perceive, experience and interact with the world, communicate and socialise differently.
Autism is not linear and while there may be some commonalities between autistic people, each should be viewed as a unique individual with strengths and differences that should be valued and supported. Autistic people may have different support needs dependent on the environment.
Autistic people may have additional needs that arise from other conditions and differences. Examples of these differences are eating and sleeping patterns, and cooccurring conditions such as Development Coordination Disorder, Hypermobility and mental health conditions.
Autistic people have strengths and differences in sensory processing and integration for example being hyper (over) or hypo (under) sensitive to sensory input for example sound, touch, taste, smells, light, or colour.
For further context - South Tyneside is around 25 square miles (64 square kilometres), with a population of around 148,000residents. It is one of the most deprived areas in England (ranking 12th of all English Local Authorities).
At the time of writing, there are approximately 1,600 people who have a diagnosis of Autism only in South Tyneside. There are approximately 350 people in South Tyneside who have a diagnosis of Autism with a Learning Disability. National prevalence rates indicate that this is more likely to be between 2,000 and 3,000 people.
Feedback from residents accessing The Toby Henderson Trust at the Autism Hub indicates that experience of services, level of support and people’s understanding of Autism varies, which can impact on their quality of life, their social isolation and that of their wider family.
This underpins the reason why our service is so needed across the borough to relieve the disparity in experiences and ensure access to relevant and meaningful specialist support.

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